Madelyn Saner and Lexi Dunn both spent years seeking a diagnosis that explained their symptoms. Now, they're raising awareness about Ehlers-Danlos syndrome locally and over social media. Madelyn Saner ...
CHESAPEAKE, Va. — Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that impacts about 1 out of every 300 people, according to the National Institute of Health. “I’ve had four neck ...
Oct. 20—ROCHESTER — October is Dysautonomia Awareness Month and local advocators for awareness of the condition gathered in Peace Plaza on Oct. 19, 2024. Madelyn Saner and Lexi Dunn have been ...
Jeevan Mann and Delaney Kenney appear on “The Bendy Bodies Podcast" to discuss their diagnoses and the opportunity to contribute to the body of knowledge about this rare connective tissue disorder ...
Please provide your email address to receive an email when new articles are posted on . In a recent editorial, Nicole Bundy, MD, medical director at Mymee Inc., said that celebrities do a good job ...
Jameela Jamil took to Instagram during Christmas week 2022 to inform her followers about the health condition she lives with. The video shows the "She-Hulk" star pulling the skin on her face outward ...
The key market opportunities in EDS include increasing awareness for early diagnosis, particularly for hEDS, and addressing the high unmet medical needs for effective treatments. The absence of ...
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