Brooke Eby Shares Update in Her ALS Progression After She Started 'Choking More' in Recent Months

The TikTok star, 37, was officially diagnosed with the terminal neurodegenerative disease in 2022 ...
People

Mom Battling Rare ALS Pleads for 'Compassionate Use' of New Life-Saving Drug Biogen Won't Give Her

"It's heartbreaking," Lisa Stockman-Mauriello says of being denied access to a drug that could treat her Bulbar ALS Joelle Goldstein is a Senior News Editor on the TV team for PEOPLE Digital. She has ...
Healio

EMA grants orphan drug designation to spinal and bulbar muscular atrophy drug

Please provide your email address to receive an email when new articles are posted on . The European Medicines Agency has granted orphan drug designation to a small molecule intended to treat spinal ...
Business Wire

Nido Biosciences Announces Publication of Collaborative Research Revealing Clinically Meaningful Endpoints for Spinal and Bulbar Muscular Atrophy

BOSTON--(BUSINESS WIRE)--Nido Biosciences (Nido Bio), a clinical stage company developing precision medicines for debilitating neurological diseases, today announced a new publication in Neurology ®, ...
Yahoo Finance

AnnJi Pharmaceutical Company Announces Positive Phase 1/2a Results for AJ201 in Spinal and Bulbar Muscular Atrophy (SBMA) Patients

TAIPEI, May 22, 2025 /PRNewswire/ -- AnnJi Pharmaceutical Co., Ltd., a clinical-stage Taiwanese biotechnology company focused on addressing unmet medical needs in dermatology, neurology, and rare ...